ABOUT J-BONE

Jacob (a.k.a.  J-Bone), was your typical 11 year old boy. He loves sports. Playing sports, talking sports, watching sports, he loved his sports. He had just made the travel baseball team when he began complaining of leg pain in October 2018. As a healthy 11 year-old boy, he had been diagnosed with growing pains by his pediatrician, which is very common.  A few months later and an unimaginable evening of extreme leg pain on Saturday, March 16th, he went for an x-ray of his leg. He was immediately sent to CHOP's ER and we learned that Jacob had a very rare form of bone cancer, called Ewing's Sarcoma.  Jacob is now known as our "Ewing's Sarcoma Warrior" and YOU who are reading this, are a member of his army. 

Jacob's treatment plan would consist of 14 rounds of chemotherapy, a major orthopedic surgery half way through (to try and save his leg) and extensive physical therapy. All of this was so hard to comprehend and as we learned, with cancer, nothing is guaranteed. Shortly after his surgery, we learned that the pathology report showed a positive margin in his knee. This news was completely devastating. We hoped and tried to save his leg, but couldn't. Being faced with an even tougher decision, we knew we had to do what was best, the option that would give Jacob the best chance at living cancer-free. In Decmeber 2019 he completed treatment and underwent another surgery in January 2020, to amputate his right leg. He accepted the decision and was ready to move on. He got his first leg in February 2020 and was all set to start PT when Covid hit. He wasn't going to let a global pandemic keep him from walking, so along with his prosthetist, he taught himself how to walk with his prosthetic leg. He is now 6 months cancer free and getting strong every day!

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